The 36-hour day A family guide to caring for people who have Alzheimer disease and other dementias
Book - 2021
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Baltimore :
Johns Hopkins University Press
2021.
- Language
- English
- Main Author
- Other Authors
- Edition
- 7th edition
- Physical Description
- xv, 341 pages ; 24 cm
- Bibliography
- Includes index.
- ISBN
- 9781421441719
9781421441702
- Foreword
- Preface
- Chapter 1. Dementia
- What Is Dementia?
- The Person Who Has Dementia
- Where Do You Go from Here?
- Chapter 2. Getting Medical Help for the Person Who Has Dementia
- The Evaluation of the Person with a Suspected Dementia
- Finding Someone to Do an Evaluation
- The Medical Treatment and Management of Dementia
- The Physician
- The Nurse
- The Social Worker
- The Geriatric Care Manager
- The Pharmacist
- Chapter 3. Characteristic Behavioral Symptoms in People Who Have Dementia
- The Brain, Behavior, and Personality: Why People Who Have Dementia Do the Things They Do
- Caregiving: Some General Suggestions
- Memory Problems
- Overreacting, or Catastrophic Reactions
- Combativeness
- Problems with Speech and Communication
- Problems People Who Have Dementia Experience in Making Themselves Understood
- Problems People Who Have Dementia Experience in Understanding Others
- Loss of Coordination
- Loss of Sense of Time
- Symptoms That Are Better Sometimes and Worse at Other Times
- Chapter 4. Problems in Independent Living
- Mild Cognitive Impairment
- Managing the Early Stages of Dementia
- When a Person Must Give Up a Job
- When a Person Can No Longer Manage Money
- When a Person Can No Longer Drive Safely
- When a Person Can No Longer Live Alone
- When You Suspect That Someone Living Alone Is Developing Dementia
- What You Can Do
- Moving to a New Residence
- Chapter 5. Problems Arising in Daily Care
- Hazards to Watch For
- In the House
- Outdoors
- Riding in the Car
- Highways and Parking Lots
- Smoking
- Hunting
- Nutrition and Mealtimes
- Meal Preparation
- Mealtimes
- Problem Eating Behaviors
- Malnutrition
- Weight Loss
- Choking
- When to Consider Tube Feeding
- Exercise
- Recreation
- Meaningful Activity
- Personal Hygiene
- Bathing
- Locating Care Supplies
- Dressing
- Grooming
- Oral Hygiene
- Incontinence (Wetting or Soiling)
- Urinary Incontinence
- Bowel Incontinence
- Cleaning Up
- Problems with Walking and Balance, and Falling
- Becoming Chairbound or Bedfast
- Wheelchairs
- Changes You Can Make at Home
- Should Environments Be Cluttered or Bare?
- Chapter 6. Medical Problems
- Pain
- Falls and Injuries
- .Pressure Sores
- Dehydration
- Pneumonia
- Influenza and COVID-19
- Constipation
- Medications
- Dental Problems
- Vision Problems
- Hearing Problems
- Dizziness
- Visiting the Doctor
- If the Person with Dementia Must Enter the Hospital
- Seizures, Fits, or Convulsions
- Jerking Movements (Myoclonus)
- Death of the Person Who Has Dementia
- The Cause of Death
- Dying at Home
- Hospice and Palliative Care
- Dying in the Hospital or Nursing Home
- When Should Treatment End?
- What Kind of Care Can Be Given at the End of Life?
- Chapter 7. Managing the Behavioral and Neuropsychiatric Symptoms of Dementia
- The Six R's of Behavior Management
- Concealing Memory Loss
- Wandering
- Why People Wander
- The Management of Wandering
- Sleep Disturbances and Night Wandering
- Worsening in the Evening ("Sundowning")
- Losing, Hoarding, or Hiding Things
- Rummaging in Drawers and Closets
- Inappropriate Sexual Behavior
- Repeating Questions
- Repetitious Actions
- Distractibility
- Clinging or Persistently Following You Around ("Shadowing")
- Complaints and Insults
- Taking Things
- Forgetting Phone Calls
- Demands
- Stubbornness and Uncooperativeness
- When the Person Who Has Dementia Insults the Sitter
- Using Medication to Manage Behavior
- Chapter 8. Symptoms Associated with Mood Change and Suspiciousness
- Depression
- Complaints about Health
- Suicide
- Alcohol or Drug Abuse
- Apathy and Listlessness
- Remembering Feelings
- Anger and Irritability
- Anxiety, Nervousness, and Restlessness
- False Ideas, Suspiciousness, Paranoia, and Hallucinations
- Misinterpretation
- Failure to Recognize People or Things (Agnosia)
- "My Mother Is Coming for Me"
- Suspiciousness
- Hiding Things
- Delusions and Hallucinations
- Having Nothing to Do
- Chapter 9. Special Arrangements If You Become III
- Ways to Get Help
- In the Event of Your Death
- Chapter 10. Getting Outside Help
- Help from Friends and Neighbors
- Finding Information and Services
- Kinds of Services
- Having Someone Come into Your Home
- Home Care
- Adult Day Care
- Short-Stay Residential Care
- Planning in Advance for Home Care, Day Care, and Respite Care
- When the Person Who Has Dementia Rejects the Care
- Your Own Feelings about Getting Respite for Yourself
- Locating Resources
- Paying for Care
- Should Respite Programs Mix People Who Have Different Problems?
- Determining the Quality of Services
- Research and Demonstration Programs
- Chapter 11. You and the Person Who Has Dementia
- Changes in Roles
- Understanding Family Conflicts
- Division of Responsibility
- Your Marriage
- Coping with Role Changes and Family Conflict
- A Family Conference
- When You Live Out of Town
- When You Are Not the Primary Caregiver, What Can You Do to Help?
- Caregiving and Your Job
- Your Children
- Teenagers
- Chapter 12. How Caring for a Person Who Has Dementia Affects You
- Emotional Reactions
- Anger
- Embarrassment
- Helplessness
- Guilt
- Laughter, Love, and Joy
- Grief
- Depression
- Isolation and Feeling Alone
- Worry
- Being Hopeful and Being Realistic
- Mistreating the Person Who Has Dementia
- Physical Reactions
- Fatigue
- Illness
- Sexuality
- If Your Spouse Has Dementia
- If a Parent Who Has Dementia Lives with You
- The Future
- You as a Spouse Alone
- When the Person You Have Cared for Dies
- Chapter 13. Caring for Yourself
- Take Time Out
- Give Yourself a Present
- Friends
- Avoid Isolation
- Find Additional Help If You Need It
- Recognize the Warning Signs
- Counseling
- Joining with Other Families: The Alzheimer's Association and Similar Organizations
- Support Groups
- Excuses
- Advocacy
- Chapter 14. Financial and Legal Issues
- Your Financial Assessment
- Potential Expenses
- Potential Resources
- Where to Look for the Forgetful Person's Resources
- Legal Matters
- Chapter 15. Long-Term Care Arrangements
- Types of Living Arrangements
- Moving with the Person Who Has Dementia
- Nursing Homes
- Memory Care Units
- Finding a Long-Term Care Setting outside the Home
- Paying for Care
- Guidelines for Selecting a Long-Term Care Facility
- Moving a Person to a Residential Care Facility
- Adjusting to a New Life
- Visiting
- Your Own Adjustment
- When Problems Occur in the Nursing Home or Other Residential Care Facility
- Sexual Issues in Nursing Homes or Other Care Facilities
- Chapter 16. Preventing and Delaying Cognitive Decline
- Usual Age-Associated Changes
- Recalling Words and Speed of Mental Performance
- Risk Factors for Dementia
- Cardiovascular Factors
- Physical Exercise
- Social and Intellectual Activity
- Diet
- Education
- Diabetes
- Depression
- Toxins
- Head Injury
- Age
- Genetics
- Medications
- Summary
- Chapter 17. Brain Disorders and the Causes of Dementia
- Mild Cognitive Impairment
- Dementia
- Alcohol Use Disorder-Associated Dementia
- Alzheimer Disease
- Amnestic (Korsakoff) Syndrome
- Cerebral Amyloid Angiopathy
- Chronic Traumatic Encephalopathy
- Corticobasal Ganglionic Degeneration
- Depression
- The Frontotemporal Dementias
- HIV/AIDS Dementia
- Huntington Disease
- Lewy Body Dementia
- Parkinson Disease-Associated Dementia
- Primary Progressive Aphasia
- Progressive Supranuclear Palsy
- Traumatic Brain Injury (Head Trauma)
- Vascular Dementia
- Young or Early Onset Dementia
- Other Brain Disorders
- Delirium
- Stroke and Other Localized Brain Injury
- Transient Ischemic Attack
- Chapter 18. Research in Dementia
- Understanding Research
- Bogus Cures
- Research in Vascular Dementia and Stroke
- Research in Alzheimer Disease
- Structural Changes in the Brain
- Brain Cells
- Neuroplasticity
- Neurotransmitters
- Electrical Signaling
- Abnormal Proteins
- Abnormal Proteins within Brain Cells
- Nerve Growth Factors
- Infection
- Prions
- Brain (or Stem) Cell Transplants
- Metals
- Immune System Defects
- Head Trauma
- Drug Studies
- Epidemiology
- Down Syndrome
- Aging
- Heredity and Dementia
- Sex
- Neuropsychological Testing
- Brain Imaging
- Keeping Physically and Mentally Active
- The Effect of Acute Illness on Dementia
- Research into the Delivery of Services
- Protective Factors
- One Disease or Many?
- Index