What's wrong? Personal histories of chronic pain and bad medicine

Erin Williams

Book - 2024

What's Wrong? is author, illustrator, and scientific researcher Erin Williams's graphic exploration of how the American health-care system fails us. Focusing on four raw and complex firsthand accounts, plus Williams's own story, this book examines the consequences of living with interconnected illnesses and conditions like: immunodeficiency; cancer; endometriosis; alcoholism; severe depression; PTSD. Western medicine, which intends to cure illness and minimize pain, often causes more loss, abuse, and suffering for those Americans who don't fit within the narrow definition of who the system was built to serve -- cis, white, heterosexual men. The book explores the many ways in which those receiving medical care are often o...verlooked, unseen, and doubted by the very clinicians who are supposed to heal them. What's Wrong? is also a beautiful celebration of nontraditional modes of healing, of how we become whole not because of health care but despite it.

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Subjects
Genres
Graphic novels
Illustrated works
Nonfiction comics
Published
New York : Abrams ComicArts 2024.
Language
English
Main Author
Erin Williams (author)
Physical Description
249 pages : chiefly illustrations ; 21 cm
Bibliography
Includes bibliographical references.
ISBN
9781419747342
Contents unavailable.
Review by Publisher's Weekly Review

If Western medicine tends to overlook patients' individual lived experiences, this powerful collection of illustrated personal histories from Williams (Commute) embodies a protest of sorts. Framed by the artist's own narrative of chronic mental and physical illnesses, the stories spotlight four people whose conditions were made worse by the professionals and systems meant to help them. Dee is a Brooklyn-born woman from a Jamaican family, whose circuitous navigation of a racist medical system may have led to a delayed diagnosis of bladder cancer. Rain is a queer trans woman with a primary immunodeficiency syndrome that primarily affects genetic males; her diagnosis leaves her struggling financially and her identity in a state of flux. Alex, one of the elite gymnasts sexually abused by former U.S.A. women's national team doctor Larry Nassar, struggles to separate joy (the endorphins of a backflip) from dread (of the "hundreds of 'treatments' " she received from Nassar). Williams, herself a former cancer researcher, once made science her "entire personality." Here she cites systemic failures of medicine, but her thesis is ultimately existential: medicine can be part of care, she posits, but true care requires community. Intricate watercolors and flattened digital art depict the feelings that science cannot: bodies falling through space, rendered animalistic, ghostly, monstrous--but also occasionally flourishing, when care for the soul is part of the process. Though these portraits can be harrowing, they offer solidarity and uplift to those who've felt marginalized by the medical system. Agent: Paul Lucas, Janklow & Nesbit Assoc. (Jan.)

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Review by Kirkus Book Review

Williams examines the disparities in the American health care system and what it means to experience chronic pain through thoughtful prose and affecting illustrations. The author reports that 20% of Americans suffer from chronic pain. She is one of them, and her pain lies at the intersection of trauma, alcoholism, ulcers, heartburn, and more. Despite the endless doctors' appointments and prescriptions, "I still live without meaningful relief or medical consensus." Sadly, this experience is common for many of the 50 million Americans who deal with chronic pain. Williams also shows how women, transgender individuals, and people of color suffer disproportionately from the failings of health care professionals. Navigating a system built for white, cisgender men, many other demographics find that their symptoms are confounding or outright dismissed by doctors. Through four case studies and accounts from her many frustrating experiences, Williams applies personal narratives to the statistics, exploring the intersectionality of pain and its mental, physical, and emotional toll. With her prior experience working in oncology, she's able to view medicine from the perspective of both patient and practitioner. Her empathetic storytelling delivers far more complexity and nuance than a medical diagnosis would offer. Importantly, there's hope to be found here. In addition to providing an essential recording of suffering, Williams delivers a call to action. With compelling prose accompanied by gorgeous illustrations, she shows us that "art has as much to tell us about illness as medicine does. Pain, like art, isn't fixed, passive, or inert." The colorful illustrations are testament to the care that's required in healing. Medicine is part of that care, but only one part. Care requires more than just clinical evaluations, she writes; it "requires that trauma, whether personal, intergenerational or systemic, is addressed." A passionate, memorably presented manifesto for healing. Copyright (c) Kirkus Reviews, used with permission.

Copyright (c) Kirkus Reviews, used with permission.