Telltale hearts A public health doctor, his patients, and the power of story

Dean-David Schillinger

Book - 2024

"For over four decades, Dr. Dean-David Schillinger has been a witness to the evolution of public health in America. From his days as a young, bright eyed resident to the Chief of Internal Medicine at one of the country's largest public hospitals, Schillinger has seen thousands of patients and observed how our healthcare system can both work for and against them. Yet, it wasn't insurance or improved medical tests that mattered most; it was simply listening to his patients. In Telltale Hearts, Schillinger takes readers into the exam rooms of a public hospital as he recounts his various experiences he's had with patients and how listening to their stories, their backgrounds and more, revolutionized his own approach to medic...ine. In a hospital that serves mostly low income and marginalized populations, it was never just the injury or ailment that was the whole story but rather the social, political and racial circumstances that led patients to the hospital in the first place. A woman who refuses to take her pills actually cannot swallow them to begin with while another who seems to be skipping her insulin injections has a family member who is stealing them. A patient with Type 2 diabetes doesn't just suffer from high blood sugar but has consistently lived in a food desert where sugary beverages and unhealthy food were the only options. With each story and each patient, Schillinger urges us to look at how listening to patients not only can lead to better care in a hospital, but a more empathetic approach to public health in general. Written with compassion and introspection, Telltale Hearts is a moving portrait of modern medicine and an urgent call for change in how we, as a society, take care of our own"--

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  • Prologue
  • Part II. When There Is No Story
  • Chapter 1. The Magic Bus
  • Chapter 2. Medical School Dropout
  • Chapter 3. The Luminati
  • Chapter 4. The Culture of Blood
  • Chapter 5. Man and Bird
  • Chapter 6. Patagonia Pastorale
  • Chapter 7. The Quixotic Pursuit of Quality
  • Chapter 8. The Brother
  • Part 2. In Story Lies the Cure
  • Chapter 9. The Disability Blues
  • Chapter 10. Lost in Translation
  • Chapter 11. Detectives of Social Vulnerability
  • Chapter 12. Racism as a Public Health Threat: "It's About Time"
  • Chapter 13. The Telltale Heart
  • Chapter 14. The Mood of the Bay
  • Chapter 15. Flags and Statues
  • Chapter 16. The Frequent Flyer
  • Chapter 17. Smoke and Mirrors
  • Part 3. Story as Catalyst
  • Chapter 18. Walking on Coals: Melanie's Story
  • Chapter 19. Melanie Goes to the State Capitol
  • Chapter 20. Melanie Goes to Court
  • Chapter 21. Melanie Goes to City Hall
  • Chapter 22. Melanie Goes Onstage
  • Epilogue: Song for My Father: To the Dark Side and Back Again
  • Acknowledgments
  • Credits
Review by Booklist Review

When you imagine a doctor, your first thought is likely a stethoscope and white lab coat, maybe a scalpel or syringe. But a doctor's ears are their most important tool, and patience is a high-ranking attribute. Schillinger, a public health leader and primary care physician in San Francisco, concentrates on the essentiality of listening in the care of patients. Regarding the usefulness of medical interviews, he wisely writes, "in the story lies the answers." Yet doctors increasingly defer to blood tests and imaging studies rather than relying on the diagnostic value and therapeutic power of these stories as a physician's time spent with patients is increasingly truncated. Many of Schillinger's patients belong to marginalized populations. The waiting room of his outpatient clinic is packed with uninsured people, old folks, disabled individuals, and substance abusers. Plentiful tales of patients and diseases (serious infections, cancer, mysterious breast pain, heart failure, diabetes, sickle cell anemia) are included. His immersion in the daily suffering and misfortune of fellow human beings exacts a heavy toll on Schillinger. He recounts his severe episode of depression. The description of the doctor's emotional condition and that of his patients sometimes surprisingly overlaps: frustration, traumatization, vulnerability, shame, failure. A humble and honest, heroic and heartrending account of humanistic medicine.

From Booklist, Copyright (c) American Library Association. Used with permission.
Review by Publisher's Weekly Review

San Francisco General Hospital physician Schillinger argues for the importance of listening closely to medical patients while highlighting the inequalities that plague the American healthcare system in this impassioned memoir. "The combination of science and stories holds the key to recovery," Schillinger begins, decrying medicine's tendency to "devalue stories" in favor of formulaic treatment. For much of the account, Schillinger reconstructs patient testimonies that have informed crucial treatment decisions across his three-decade career, including that of a construction worker who switched to liquid blood pressure medicine after admitting to Schillinger he couldn't swallow pills. Other chapters delve into Schillinger's experiences treating AIDS patients in "the trenches" of the early epidemic, and his efforts to fight obesity as the California Department of Public Health's chief of diabetes control. Throughout, Schillinger keeps a sharp eye on the contrast between the options available to patients at San Francisco General, a public hospital, with other, private Bay Area institutions, most memorably through a heartbreaking anecdote about failing to get a patient with signs of cancer bumped up on a treatment list. Schillinger's palpable empathy and narrative skill underscores his conviction that "stories can break down barriers and open up windows into other people's lives." The results are moving. Agent: Bonnie Nadell, Hill Nadell Literary. (July)

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Review by Kirkus Book Review

A family doctor describes a powerful healing technique. Schillinger, professor of primary care and health policy at the University of California San Francisco, joins many colleagues who deplore today's technology-heavy, medication-oriented health care system, which often isolates patients from doctors and contributes to treatment failures. He reminds readers that it's been proved that the greatest source of information for doctors is not a test or machine, but what a patient tells them. He illustrates his approach with a steady stream of stories from his years of training at San Francisco General Hospital and practice at the UCSF Center for Vulnerable Populations, which he co-founded. Examining the monumental struggles of marginalized communities, he makes a painfully convincing case that the present system guarantees that the poor get sicker, receive less care, and die sooner. The author's stories are consistently illuminating: A man unable to walk reveals that he is an alcoholic and has lain unconscious for such long periods that his leg muscles have withered. A "frequent flyer" patient with scores of visits for problems stemming from her drug addiction, complicated by an obnoxious personality, appears 20 years later, drug-free and raising a child, grateful to the author and a few others who were kind to her. Schillinger devotes much of his text to diabetes, a public health problem as serious as those caused by tobacco. His campaign to place a warning label on sugared soft drinks, essentially liquid candy, faced an uphill battle. However, as the author writes, he knew that "to declare and wage a war against diabetes, I needed to separate from a bureaucracy currently paralyzed by conflicts of interests and politics, and pursue an alternative strategy." In this often inspiring book, he shows readers a variety of "alternative" strategies that benefit public health. Vivid medical anecdotes with occasional happy endings. Copyright (c) Kirkus Reviews, used with permission.

Copyright (c) Kirkus Reviews, used with permission.