Off the spectrum Why the science of autism has failed women and girls
Book - 2025
"Who comes to mind when you think about an autistic person? It might be yourself, a relative or friend, a public figure, a fictional character, or a stereotyped image. Regardless, for most of us, it's likely to be someone male. Autistic women are systematically under-diagnosed, under-researched, and underserved by medical and social systems--to devastating effects. In Off the Spectrum, cognitive neuroscientist Gina Rippon sheds light on how old ideas about autism leave women behind and how the scientific community must catch up. Generations of researchers, convinced autism was a male problem, simply didn't bother looking for it in women, creating a snowball effect of biased research. To correct this "male spotlight"... problem, Rippon outlines how autism presents differently in girls and women--like their tendency to camouflage their autistic traits, or how their intense interests may take a form considered to be more socially acceptable. When autism research studies don't recruit female participants, Rippon argues, it's not only autistic women who are failed; it's the entire scientific community. Correcting a major scientific bias, Off the Spectrum provides a much-needed exploration of autism in women to parents, clinicians, and autistic women themselves"--
- Subjects
- Published
-
New York :
Seal Press
2025.
- Language
- English
- Main Author
- Edition
- First edition
- Physical Description
- viii, 338 pages ; 25 cm
- Bibliography
- Includes bibliographical references (pages 293-323) and index.
- ISBN
- 9781541605022
- Preface Why Me and Why this Book?
- Introduction
- Part I. Hiding in Plain Sight
- Chapter 1. What is Autism? The Humpty Dumpty Problem
- Chapter 2. Autism's Male Spotlight Problem
- Chapter 3. Female Autism: Differently Different?
- Chapter 4. Behind the Mask: The Art of Camouflaging
- Part II. The Brains Behind it All
- Chapter 5. The Autistic Brain: To Begin at the Beginning
- Chapter 6. On Being Social
- Chapter 7. Kanner Brains and Chameleon Brains: A Female Spotlight?
- Chapter 8. Female, Autistic, and Adolescent: The Perfect Storm?
- Conclusion Asking Better Questions, Getting Better Answers
- Other Stories from Behind the Mask
- Acknowledgements
- Notes
- Index