In sickness and in health Love stories from the front lines of America's caregiving crisis

Laura Mauldin, 1977-

Book - 2026

"When twenty-seven-year-old Laura Mauldin moved to New York for graduate school in 2005, she fell wildly in love. But just months into their relationship, her partner's leukemia returned-and what began as a love story quickly turned into something else entirely: without adequate systems for long-term care or meaningful support for disabled people, Laura found herself slipping from partner to unpaid caregiver, fighting to keep the woman she loved alive within a system built to let them both fall through the cracks. Now a sociologist and professor of disability studies, Dr. Mauldin turns her personal reckoning into a powerful, urgent investigation. Weaving together her own story with intimate interviews, fieldwork, and cutting-edge ...disability research, In Sickness and In Health exposes a quiet national emergency: the impossible expectations placed on spouses and intimate partners to provide round-the-clock care in the absence of public support. In these heartbreakingly vivid portraits of couples navigating love and loss in the context of disability and illness, Dr. Mauldin shows how deeply ableism is baked into our ideas of romance, desirability, and worth. She reveals how the state systematically offloads care onto private homes, disguising abandonment as devotion-and how the labor of keeping someone alive is rendered invisible when it's done out of love. Blisteringly honest and fiercely compassionate, In Sickness and In Health is a rallying cry for a radical reimagining of care-not as a private burden, but as a collective responsibility. In connecting disability movements to the politics of love and intimacy, Mauldin reframes the conversation around caregiving, urging us to build a world where no one is left to do the work of love alone"-- Provided by publisher.

Saved in:
1 copy ordered
Subjects
Published
New York, NY : Ecco [2026]
Language
English
Main Author
Laura Mauldin, 1977- (author)
Physical Description
pages cm
Bibliography
Includes bibliographical references and index.
ISBN
9780063339132
9780063339149
  • The choice
  • Fade to black
  • Discharged
  • Decertified
  • Better friends than people
  • Funny gay males
  • On high alert
  • The blue gloves
  • Role reversal
  • Alone together
  • Leaving it behind
  • The tutor
  • In sickness and in health
  • Around the clock
  • Couch life
  • To move is to hold a we
  • Fix it
  • A good wife
  • No saint
  • The grey
  • Not well at all
  • The split
  • Conclusion: Where there is a history there is a future.
Review by Publisher's Weekly Review

This gut-wrenching account from sociologist Mauldin (Made to Hear) spotlights the hardships endured by couples in the U.S. when one partner becomes disabled or ill and the other must serve as full-time caregiver. Drawing on her harrowing experiences caring for her late partner J., who suffered from leukemia, as well as the stories of four other couples, the author explores the financial, physical, and mental toll of caregiving. The able-bodied partner, she shows, becomes a "bottomless resource"--or, as she bittersweetly calls it, "The One"--who must act as "physical therapist, appointment scheduler, medication manager, and all-around assistant." Throughout, the author pinpoints how these challenges stem from America's "minimal social safety nets," as in the case of Tina, a woman with multiple sclerosis who struggles with red tape while trying to access home-care services through Medicaid, meaning that her husband must miss work to help her; or Angel, an independent contractor who can't afford health insurance and is thus disastrously uninsured when he suffers a stroke. Mauldin's account stands out for its courageous coverage of taboo topics, including the physical effort of "toileting," caregivers who suffer from PTSD, and how infidelity can become imperative for a caregiver's mental health. (It's "the one thing that can bring you back to life," one subject says.) The result is both an unflinching look at private worlds of pain and a forceful denunciation of America's for-profit healthcare system. (Feb.)

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